The GASCDO Board of Directors is pleased to Announce Judy Grandison as its NEW President/CEO!

The GASCDO Board of Directors is pleased to Announce Judy Grandison as its NEW President/CEO! On behalf of the board of directors of GASCDO, it is my greatest pleasure to announce the appointment of Ms. Judy Grandison as President/CEO effective immediately. She is the parent of a child living with Sickle Cell Disease (SCD) and the President of Camp Jumoke (CJ). CJ is Canada’s first medically supervised, overnight camp for children living with SCD established in 1994 in Ontario, Canada. To date, Camp Jumoke provided the opportunity for over 700 children living with SCD to attend summer camp. Through this outdoor experience, children living with SCD develop an appreciation for their own capabilities as well as learn vital social and outdoor skills. The camp also provides educational support by way of an annual scholarship towards post-secondary educational costs. Since the inception of this award, Camp Jumoke has presented 19 scholarships to...

GASCDO Highlights the Global Diversity of Sickle Cell Disease on World Sickle Cell Day

Ontario, Canada— On June 19th, 2020 the Global Alliance of Sickle Cell Disease Organizations (GASCDO) will be witnessing the World Sickle Cell Day and continuing to provide a global voice and perspective for persons affected by Sickle Cell Disease / Trait. Sickle cell disease (SCD) is one of the most common inherited blood disorders in the world. GASCDO, its member organizations, collaborators and stakeholders understand that it is important that the needs of SCD patients and their families are put on the forefront of the global conversation. A key objective of GASCDO is to collaborate and catalyze impactful actions and initiatives to improve the standards of care for SCD patients particularly those living in low and medium-resource countries, as well as address the stigmas associated with the disease worldwide. GASCDO’s “Sickle Cell in My Language” campaign reflects the global diversity of this devastating disease, but more importantly, shares what it means...

COVID-19: Survey for the Global SCD Community

As COVID-19 pandemic continues throughout the world, let's work to ensure the global sickle cell community is safe!  To help GASCDO better understand and respond appropriately to the needs of the global SCD community around COVID-19,  please complete our short survey and we thank you for your time. Who can complete the survey: Patients, caregivers, care providers, and the industry.

Carol Ossai Announcement 2020

Announcing the passing of Carol Ossai, the interim Chair of the Board of Directors, Global Alliance of Sickle Cell Disease Organizations (GASCDO). It is with utmost sorrow and much sadness that we announce the passing of Carol Ossai, which occurred on Friday, April 10th, 2020. Carol’s passion to advocate for the improvement of care and treatment for people living with SCD started in 1996, after her son living with SCD suffered a stroke. This initiated the formation of the Sickle Cell and Young Stroke Survivors -a UK charity supporting children, young people and their families in the UK and Africa. From this period on, Carol dedicated her life to Sickle Cell Advocacy leaving behind her career in Food and Consumer studies. Carol also founded the Sickle Cell in Africa Patient Parent Network (SCAPPN)- a network of patients and parents directly affected by SCD that led grassroot initiatives in Africa. In 2019, Carol became a...

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March 26, 2020
Aruvant Receives Orphan Drug Designation for ARU-1801 for the Treatment of Sickle Cell Disease
– ARU-1801 is being developed as a potential one-time treatment for patients suffering from sickle cell disease and β-thalassemia
– ARU-1801 has been designed to deliver a highly potent gene payload with enhanced anti-sickling properties, allowing for a Reduced Intensity Conditioning (RIC) regimen
SourcePR Newswire/ Aruvant Sciences   Jan 22, 2020, 08:00 ET