Cassandra Trimnell

Member USA

Cassandra Trimnell is the founder and executive director of Sickle Cell 101 (SC101), a patient advocate and consultant.
In 2014, Trimnell received her Sickle Cell Educator certificate, issued by the Department of Public Health. Trimnell is responsible for developing and creating the educational material and curricula presented by Sickle Cell 101.
Sickle Cell 101 is a San Francisco Bay Area based non-profit organization that specializes in sickle cell education geared towards multiple key community stakeholders including patients and healthcare providers. Educational material covers topics pertaining to sickle cell disease and sickle cell trait and is disseminated through a variety of platforms.

As a digital advocate, Trimnell is responsible for the strategic growth and engagement of Sickle Cell 101’s digital and primary platforms, which includes its social media, website (ranked 2nd most visited by patients) and newsletter. To date, Trimnell has grown its pages to about 40,000 followers on combined social media platforms with followers originating in 103 countries. With the highest engagement rates, Sickle Cell 101 promotes community and follower interactions for individuals affected by sickle cell and other community stakeholders.

Information presented by Sickle Cell 101 includes: basic and in-depth information and statistics about sickle cell disease and trait; disease management; content addressing stigmas and misconceptions; research and patient engagement in research; patient experience and storytelling; sickle cell news, events, and medical advancements; and any additional relevant content. This content is also provided in Spanish through the Sickle Cell 101 Español social media pages.
Sickle Cell 101 provides a variety of programs that Trimnell has spearheaded to support the needs of the sickle cell community including educational and empowering social media campaigns; Ask Dr. Q, a sickle cell expert physician that provides resources and science-based responses to patient inquiries; The Sickle Cell Podcast, an auditory educational program for patients, advocates, researchers, and the general public to learn about sickle cell; and Sickle Smarts, literature provided by Sickle Cell 101 for patient advocacy groups to support their educational endeavors.

Sickle Cell 101 utilizes additional modes of education such as Continuing Education Unit trainings for healthcare professionals; national legislative advocacy; health fairs and sickle cell seminars, conferences and events. 

Trimnell received a B.A. in Global Studies: Social, Political, and Economic Development from Sonoma State University in Rohnert Park, California. Trimnell’s passion for sickle cell education and advocacy stems directly from her living with sickle cell disease, hemoglobin SS.