Biba Tinga is the President/Executive Director of the Sickle Cell Disease Association of Canada/Association d’Anémie Falciforme du Canada (SCDAC/AAFC) which is the national umbrella for Canadian Sickle Cell provincial groups. Prior to joining SCDAC/AAFC, she was the Vice-President of AAFQ (Association d’Anémie Falciforme du Québec), the provincial organization for sickle cell disease (SCD) in Quebec. It is noteworthy that Canada was the first country to pass a bill to commemorate June 19th as World Sickle Cell Day due to the tireless efforts by past and present volunteers of SCDAC/AAFC and its provincial groups.
Biba’s dedication to the Sickle Cell Disease, SCD cause started over 30 years ago when her first child was born with SCD. As the parent of a young adult living with SCD, she has a unique understanding of the needs of individuals and families dealing with the disease. She has managed the disease in developing countries as well as in North America. Since 2009, she has been active in the sickle cell community and has held various leadership positions in Canada.
She has leveraged her parental experience in experimenting with new medications, evaluating treatment options, managing the risks associated with SCD and its various complications to advocate on behalf of people living with SCD and their families in Canada. In Biba’s role as the President/Executive Director at SCDAC/AAFC, she has helped to expand the number of provinces with SCD groups; continued the national research grant program; focused on increasing education and awareness activities of SCD trait as well as developed a communication and engagement strategy that puts those living with SCD at the forefront of the debate.
Biba holds a Bachelor’s Degree in Business Management and brings her extensive experience and strong administration acumen to the management of SCDAC/AAFC. A polyglot, she is fluent in French, English as well as other African languages and able to help engage many communities around the world in order to further advance the cause of SCD.